PATTERNS OF INFORMATION-SEEKING OF PATIENTS NEWLY DIAGNOSED WITH INFLAMMATORY BOWEL DISEASE: A DESCRIPTIVE STUDY

Sophie Veilleux, Université Laval, Canada
Jolyane Blouin Bougie, Université Laval, Canada
Isabelle Noiseux, Université Laval, Canada
Alain Bitton, McGill University Health Centre, Canada
Luc Vachon, iGenoMed Consortium, Canada
Brian White Guay, Université de Montréal, Canada
John D. Rioux, Université de Montréal & Montréal Heart Institute, Canada
Published in

 JOURNAL OF INTERNATIONAL MANAGEMENT STUDIES
Volume 23, Issue 1, p5-19, October 2023

ABSTRACT

The purpose of this study is to describe the patterns for seeking and using four main sources of information by patients with inflammatory bowel disease (IBD) who meet their gastroenterologist for the first time, and to assess their level of satisfaction and reassurance with the information sources used. An online survey developed from the literature review and in collaboration with physicians and a representative of a Canadian IBD patient association was posted on the Crohn's and Colitis Foundation of Canada website. It was completed by 210 IBD patients. A descriptive analysis of the results was performed. Eighteen patterns of information seeking were identified. Nearly half of the patients used at least two sources of information, in addition to their gastroenterologist. The Internet was widely used by patients before the first appointment with the gastroenterologist (61%), and even more so after this visit (92%). Patients experienced the greatest satisfaction with print documents and other healthcare professionals (HPs, i.e., nurses and dieticians). More than half of the patients were not reassured (57.5%) and had more concerns over their illness from the answers provided by their gastroenterologist (64.6%). This study shows IBD patients naturally turn toward various sources of information, thereby reinforcing the relevance of a multidisciplinary or multimodal approach. A combination of written information, the Internet, face-to-face education and reassurance appears essential to meet their information needs and deal with their concerns

Keywords

patient; information needs; source of information; satisfaction; multidisciplinary approach; inflammatory bowel disease


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